Primary Family Caregiversʼ Reasons for Disclosing Versus Not Disclosing a Cancer Diagnosis in India

Chittem, Mahati and Norman, Paul and Harris, Peter (2020) Primary Family Caregiversʼ Reasons for Disclosing Versus Not Disclosing a Cancer Diagnosis in India. Cancer Nursing, 43 (2). pp. 1-32. ISSN 0162-220X

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Abstract

The aim of this study was to explore Indian primary family caregivers' reasons for, and experiences of, disclosure versus nondisclosure to patients about their cancer diagnosis.The findings revealed 6 main reasons for disclosing (emotional well-being, lack of control, preparing the patient, family reasons, patient's personality, and longevity/curability of the disease) and 6 reasons for not disclosing (emotional well-being, family reasons, patient's personality, longevity/curability of the disease, barriers to communication, and disease severity). Typically, disclosing caregivers considered reasons for as well as against disclosure, whereas nondisclosing caregivers considered reasons against disclosure.Most of the reasons given for disclosing and not disclosing were the same, although these reasons operated differently for disclosing and nondisclosing caregivers. In addition, justification for these reasons demonstrated cognitive consistency effects that appeared to reduce any feelings of dissonance regarding caregivers' disclosure, or nondisclosure, decisions.

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IITH Creators:
IITH CreatorsORCiD
Chittem, Mahati0000-0002-8978-3544
Item Type: Article
Additional Information: This research work was funded through a PhD fellowship awarded to the first author, M.C., by the University of Sheffield, United Kingdom, doctoral studentship. The authors have no funding or conflicts of interest to disclose. Accepted for publication September 12, 2018. DOI: 10.1097/NCC.0000000000000669
Uncontrolled Keywords: Cancer; Disclosure; India; Nondisclosure; Primary family caregivers; Qualitative; Reasons
Subjects: Arts > Liberal arts
Divisions: Department of Liberal Arts
Depositing User: Library Staff
Date Deposited: 10 Oct 2019 06:31
Last Modified: 15 Nov 2022 13:06
URI: http://raiithold.iith.ac.in/id/eprint/6490
Publisher URL: http://doi.org/10.1097/NCC.0000000000000669
OA policy: https://v2.sherpa.ac.uk/id/publication/8730
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